Memorial website in the memory of your loved one
Her legacy
Simone's legacy  
Simone's legacy will be to raise awareness of Fatty oxidation disorders. Her brothers WILL know if they have the condition or are carriers. If you know you have the condition you can lead a perfectly normal life, you just have to follow certain procedures. She will give that gift to them, so that they have the knowledge.
Fatty oxidation disorders such as MCADD (there are many more) are portrayed to be very rare. Not rare enough, Simone 'died' from one, while appearing to be in perfect health. Fatty oxidation disorders come under the term 'metabolic' and can be very hard to diagnose. 
Many children usually babies die suddenly and unexpectedly, how many I can't help wonder have been put into the bracket of cot death .I honestly don't believe they are as rare as the medical profession previously thought, hence the reason they have started a pilot screen in half the country testing new-borns.
We were warned by the people who take over your child, and your life, after a sudden death ,that we might never know the reason for Simone's death, these things sometimes just happen to babies and young children. I made it perfectly clear to all involved that I WOULD NOT ACCEPT THAT, there is always a reason, so find it. A perfectly healthy child a month off her 5th birthday doesn't just die. We have had to keep on to them to keep looking and testing to give us the answers we need and deserve.  
Simone has also made all her family and friends aware that life can be short and very unpredictable. The whole community was in shock from our families tragedy, it brought it home that if this could happen to Simone who was a picture of health then it could happen to anyone.           http://www.fodsupport.org                             http://www.climb.org.uk
S pecial
I  rreplaceable
M agical
O ne of a kind                      
N ever forgotten
E verlasting

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